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THE LONELINESS OF THE LONG-DISTANCE TRANSPLANT

ONE FAMILY LEARNS THE HARD LESSONS OF THE "NEW" HEALTH CARE.

"At that time we were very impressed," Karen recalls. "It seemed like they had their act together." In mid-May, Michela's name was added to the national list of transplant candidates.

The Fischers' lives became tied to the death of a stranger. They were issued a pager. (It tended to beep wildly in thunderstorms.) Cigna committed to pay as much as $10,000 for transportation and lodging in Omaha, and the family arranged a flight out of Centennial Airport on a private plane. "We were just waiting for something to happen," she says.

Labor Day weekend is big for people on transplant lists. Crowded roads and reckless drivers usually guarantee a big organ harvest. Last year was no exception. On September 7, at about 10 a.m., the Fischers got the call. Cliff was told that Michela had a new liver waiting in Nebraska. The whole family was on the plane by 12:30 p.m.

The operation began at about one o'clock the next morning, and lasted nearly until noon. Unfortunately, for the Fischers, it was just the beginning.

The transplant team in Omaha had prepared the family for a two-month separation from their Denver home. Michela probably would need to stay in the hospital for four weeks, they predicted, and then visit regularly as an outpatient for another month. But she began to develop complications almost immediately after the operation.

Cliff stayed with his daughter and wife as long as he could, but after five weeks he had to return to Denver and his job. He and their two boys (one recently adopted) flew back to Colorado. Karen remained behind in a motel room close to the hospital.

Within days, Michela's doctors said another operation would be necessary--immediately. "We were afraid she might not make it," Karen says. But Cliff couldn't leave for Omaha until the day after the operation. He hopped into the car with one of his sons (the other stayed with a friend) and made the ten-hour drive in nine hours.

Cliff stayed another week with Karen before having to return to Denver. "It was tough being back here again," he says.

Tired of being apart, the Fischers called Cigna in mid-October and asked if Michela could receive aftercare in Denver. The insurance company agreed--after all, only the transplant operation itself need be in Omaha, the representative said. The catch, however, was that if Michela needed a second transplant it would have to be done in Nebraska. With their daughter's condition vacillating daily--and the possibility of a second transplant very real--the family decided to continue care in Omaha.

After about eight weeks, Michela was cleared to leave the hospital. A couple of weeks later, Cliff and the boys returned to Omaha so the whole family could celebrate Thanksgiving. They stayed for one week.

After Cliff had returned to Colorado, Michela's condition deteriorated again, and she was admitted back into the hospital. Due to work pressures, Cliff couldn't immediately come to Omaha. It wasn't until a couple of days before Christmas that he was able to jump into the car with the two boys one more time, and head back to Nebraska.

The Fischers' Christmas Eve was celebrated in the hospital, with Michela on dialysis. "But at least I was there then," recalls Cliff. "So that helped."

By New Year's Eve, Michela was well enough to become an outpatient again. Nevertheless, as a result of what the Fischers felt was less-than-adequate medical care, Cliff requested a meeting with Michela's Omaha medical team.

The family had intended to return to Denver the following week. During the meeting, however, their hopes were smothered once again: The physicians recommended another surgery to repair Michela's still malfunctioning bile ducts. Exhausted, the family decided to delay the surgery and return to Denver.

"What we really were going for was a second opinion" at Children's Hospital, Karen says. Adds Cliff, "We also sort of came home to regroup." Cliff and the boys got behind the wheel for yet another ten-hour drive; Karen and Michela flew back.

Since then, the Fischers have asked Children's Hospital to assume Michela's medical care, an expense Cliff and Karen now say they would gladly pay out-of-pocket. But the Denver hospital refused, saying it would be inappropriate for it to get involved in the middle of Michela's care.

A half-year into their odyssey, the Fischers laud Cigna's representatives as responsive, and their insurance policy as thorough. "We've basically paid zilch for a liver transplant," Cliff notes. Karen adds, "We haven't even paid our $10 co-payment."

Even so, the strain of their family's being separated on and off for nearly six months--not to mention Cliff's seven weeks off work--when the operation could have been performed less than a half-hour away from their house has caused the Fischers to rethink how they'd choose between a free transplant operation hundreds of miles away, or an expensive one nearby with familiar doctors and nurses. "If there's any way we could do it all over again," Cliff says, "we'd suck it up and just pay for it."

For now, however, the family simply hopes their daughter's liver performs well enough for her to return home for good. When that day will arrive is far from clear. On February 4, the Fischers returned to Omaha so Michela, now eleven, can undergo more surgery to clear her bile ducts. The hospital has told Cliff and Karen they should expect to stay in Omaha anywhere from two weeks to two months.

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