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Alternative therapy could be the next step for those with spinal cord injuries

Photos: Chanda Hinton Leichtle is out to change how Medicaid treats spinal cord injuries

Alternative therapy could be the next step for those with spinal cord injuries

At the moment, Chanda Hinton Leichtle's back resembles that of a stegosaurus.

Thin stainless-steel needles stand sentry on either side of her spine as she lies on a padded table facing the wall. It's a position the small, feisty thirty-year-old can't get into on her own: When she was nine, a teenage boy accidentally shot her, severing her spinal cord and paralyzing her below the chest. To get her here, her acupuncturist lifts her from her wheelchair and carries her, like a bride over a threshold. He props a pillow between her legs, hikes up her red Nebraska Huskers T-shirt, unwraps his sterile needles and taps them into the skin above where her black lace underwear peeks out from the top of her yoga pants.

See also: Photos: Chanda Hinton Leichtle is out to change how Medicaid treats spinal cord injuries

Hinton Leichtle is quiet. A heat lamp bathes her face in warmth, and soothing music plays on a stereo. It's a sharp contrast to the way she rolled in, upbeat and joking, her iPhone in one hand and a pair of white earbuds snaked around her neck. Soon after acupuncturist Stephen Corsale took a seat on a cream-colored exercise ball to ask her how she's been, Hinton Leichtle was multi-tasking, answering his questions and text-messaging at the same time. The texts, like much of what Hinton Leichtle does, are work-related. But for her, work is personal: She's on a mission to change the way modern medicine treats people with disabilities, and the texts inform her there's been another snag, another misunderstanding she has to sort out.

"Any bodily pains?" Corsale asks her.

"No," Hinton Leichtle answers. "I'm doing really good."

"We'll do a little de-irritating, then," he says.

"De-irritating," she says, smiling. "Yeah, let's do that."

For the past seven years, Hinton Leichtle has been fighting — as the director of her own nonprofit, the Chanda Plan Foundation — to provide massage, adaptive yoga, chiropractic services and other alternative therapies to people with physical disabilities.

Although the medical field has been slow to research its benefits, there's plenty of anecdotal evidence to show that alternative medicine keeps people with disabilities healthier and out of the hospital. In 2005, two years after Hinton Leichtle discovered acupuncture following her own emergency hospital stay, she founded the Chanda Plan, which raises money to pay for alternative therapies for people with spinal cord injuries, cerebral palsy, muscular dystrophy, multiple sclerosis and spina bifida whose insurance companies don't pay for them. (Most don't.)

But that wasn't enough. So in 2008, she took her fight to the State Capitol, pushing for legislation to create a unique pilot program that would allow Medicaid to pay for certain alternative therapies for people with spinal cord injuries. The bill was vetoed due to funding issues, but Hinton Leichtle convinced lawmakers to run it again the next year, this time with the promise that her foundation would raise the seed money. It passed, and she's spent three years getting it up and running, a process full of bureaucratic tangles and setbacks.

The program is now on the cusp of starting, and for Hinton Leichtle, the morning acupuncture session is a break from her role as chief architect, problem solver and champion.

"There's some activity there, but we're trying to get more activation," Corsale explains as he works one of the tiny, flexible needles into a key pressure point. In addition to relieving pain and stress, acupuncture helps kick-start activity in Hinton Leichtle's kidneys, bladder and uterus — organs that function more sluggishly than normal because of her injury. Though the needles can sting a bit, Hinton Leichtle prefers them to the noxious drugs she took previously to treat the chronic aches, spasms and infections that come with having a spinal cord injury.

"It's just a totally different atmosphere when you go to a physician's office than here," she says, her voice growing drowsy. "I would rather do this than just take medication."

And if she has her way, she and the quarter-million people in the United States living with spinal cord injuries — many who were hurt while they were young — will have that option.

******

The summer before fourth grade, Hinton Leichtle spent a week with family friends while her own family moved from Grand Island, Nebraska, to the town of Cairo. The family friends had a son and a daughter, and the day before Hinton Leichtle's stay was up, the mother took the daughter to an appointment, leaving her fourteen-year-old son and his friend to babysit their nine-year-old guest.

The boys spent the August afternoon target shooting, a common pastime in their rural town. After a while, they went inside to take a break and eat popsicles. When Hinton Leichtle said she wanted one, too, they teased her. You can have a popsicle, they said, but not a red one. Hinton Leichtle obeyed at first, choosing purple. But the stubborn blue-eyed blonde wasn't going to let them win; when they weren't looking, she swapped the purple for a red. That's when the son of the family made a joke that changed her life forever. "He's like, 'Let's just shoot her so we don't have to worry about her taking our popsicles,'" she recalls.

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9 comments
Corners
Corners

Hi Chanda, I appreciate all you are doing to try and help others with spinal cord injury. I have an L1-L2 level injury from an accident when I was sixteen years old. Today I am walking with crutches, but I have worked really hard in physical therapy for a lot of years to walk.You can learn more about my story: http://zinahermez.wordpress.com  I agree with you, and I have never been a fan of pain medication myself. 

patricia.calhoun
patricia.calhoun moderator editor

we'd like to publish some of these comments in our print edition, ideally with the author's full name/town. If that's okay, e-mail me at patricia.calhoun@westword.com

notonmydime
notonmydime

Thanks Westword for alerting us to the use of the Medicaid waiver program to waste taxpayer money.

No one wants to say no to pretty victims of spinal cord injuries like Chandra, or self-motivated men like Mr. Haenel, so it is easy to see how the Chandra foundation has made progress. Sadly, its goals are clear--to get public money for unproven treatments.

 

Conventional medicine is based on scientific knowledge whereas alternative medicine is based on clinical or anecdotal evidence. We have an entire wing of National Institute of Health devoted to trying to prove that alternative therapies work (with little success, I add), and their website states: "there is insufficient evidence to draw definite conclusions about the effectiveness of acupuncture for acute low-back pain."

 

There are no control groups to this pilot program, and the medical person administering it is someone with a vested interest in the therapies offered. Proven treatments like physical therapy are lumped in with pseudo medicine, invalidating any objective demonstration of success that may come from the program. However popular these alternative therapies might be, we need to see evidence that they work.

 

I hope Colorado citizens and legislatures will thank the Chandra foundation for ironing out kinks in the Waiver program while demonstrating exactly how to suck scarce dollars from taxpayers in the name of the disabled. I also hope we demonstrate our thanks by showing poorly designed programs out the door, because our Medicaid patients deserve better.

 

kcm2us
kcm2us

gee Westword, could you make the lede to the story a little more lurid?

"carries her, like a bride over a threshold. He props a pillow between her legs, hikes up her redNebraska Huskers T-shirt, unwraps his sterile needles and taps them into the skin above where her black lace underwear peeks out from the top of her yoga pants."

 

kcm2us
kcm2us

Great! Will medicare start paying for my Budweiser? It kick-starts my kidneys, bladder and ureter and I prefer it to noxious drugs. 

cheryl.bianchi
cheryl.bianchi

this is fantastic news...now to get california to step up...thanks for your hard work

brendacombs
brendacombs

@notonmydime I certainly hope you never have a family member to suffer from a spinal cord injury and have only drugs with horrible side effects to deal with their health issues.  Please, where is your compassion?  Not all things are known and able to be proven by a medical system that will not listen to information that does not pad the pockets of  big pharma.  Is not the word of the patients any good for whether the alternative health care is working for them.  Would you rather pay for a surgery and and hospital bill with medicaid dollars than to pay for a few acupuncture treatments that takes care of the problem with no side effects?  Please open your mind and learn more about this issue before condemning disabled people to issues you can not begin to understand.

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                          

ybarcewski
ybarcewski

 @kcm2us I won't pay for you Bud but maybe it will pay for your rehab.

notonmydime
notonmydime

Medicaid and private insurance should both be paying for effective rehab, but this is a poorly designed program. We could just as well pay for toothpick based placebo treatment and point to its cost-effectiveness.

 
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